Pain Fog: Living in spite of Chronic Pain
  • Home
  • About
  • Blog
  • Resources
    • Body Scan
    • Trial and Error
    • Relationships
    • Parenting in Pain
    • Mental Health
    • What the Doctors Don't Tell You
    • Travel
  • Contact

Day 49. Tomorrow is Day 50!!

4/12/2015

2 Comments

 
Tomorrow marks day fifty of my blog. My intention when I started the blog was it would be daily until the surgery date then weekly thereafter. We thought it would be about thirty daily posts, before I switched to weekly. Since my surgery isn't going to happen in April it has meant I continued. I will see where it goes from here, however I want to tell my readers a little bit about who else is reading.

To my surprise there are people reading from forty six different countries! Forty six! That has really kept me writing. Hello to China, Russia, Egypt, United States, Japan, Italy and to the other forty countries, I appreciate you being a part of my journey, and I sincerely hope you stay along for the ride.

Most of my blog visitors have come to me from those of you who have shared my link on Facebook. So thank you for doing that. You may not be in pain yourself but you never know who around you will benefit from the blog. So I am humbly asking if you would share this link today. Remember not all disabilities are visible so there maybe someone reading you page who could benefit.

We are very close to the one thousand reader mark and we thought it would be fun to try to reach it this week. We currently have 952 readers on a regular basis. She this week, share, share, share and let's see if we can reach one thousand. (Click on the Facebook or Twitter icon below to share).
With the physical limitations I have it is fun to be able to reach out to all of you through writing. Knowing I have all those people curious about what I have to say adds interest and responsibility to my day.
I want to thank those of you who have taken the time to leave comments, either privately or on the blog. Knowing you enjoy what I am writing and can learn from some of my experiences makes it very worthwhile.

Finally a positive attitude is more than just glossing everything over, we know that. Together we will stay positive while being real. I look forward to moving forward with all of you and hopefully some of your friends.
Picture
2 Comments

Day 48. You gotta know when to walk away and know when to run‏.

4/11/2015

0 Comments

 
I will start today with the most important things I look for in any practitioner. First I look for references from others, who have received effective treatment. What I consider to be another very important part of the relationship is the rapport between us. If I go to a practitioner and I do not feel comfortable or I feel as though they're rushing me or they're not listening to what I have to say, there is no second visit.One thing I know for sure after 20 years is that I'm in charge of my own health, and I look for a practitioner who feels the same way. The next thing I look for is someone with a very upbeat,positive approach. I don't go in there with s long face, whoa is me attitude, humor is a big bonus for me. Consequently, I have a physio and athletic therapist who make me laugh all the time. It's not that we can't have a serious conversation about my health, but it gets to be a bit of a drag dwelling on what's wrong all of the time. Dark humor has kept me going.

One of the things that I have used and continue to use as part of my treatment plan is chiropractic care. Somebody with a spinal cord injury, is generally not a good fit for chiropractic care. What I have learned, is chiropractors these days is various methods of treatment other than manual adjustments. Therefore I have gone to a chiropractor to receive ultrasound, electric muscle stimulation, cold Laser treatment and various other forms of chiropractic care.

Reiki and reflexology, I have found to be very relaxing, and almost meditative for me. While I like both of these treatments I have not found them to make a significant difference. To pain control. I would recommend trying them as they are certainly effective for some.

I feel like over the years I've probably taken every supplement and vitamin known to mankind, I'm not sure if any of that helped me, in any great way but I don't think it hurt me at all. What I would say about taking supplements and vitamins is to do so in the mindful way. I recommend trying one thing at a time and chart progress if you feel there is any.

Another form of treatment that fits both alternative treatment and the medical field is injections for pain. I have used both steroid Injections and natural injections to help with pain. I would have to say that I have found both to be very successful. I have had Cortisone shots in my shoulder, foot, hip and knee. While the injections are quite painful at the time of injection and shortly afterward, they are quite effective. They seem to last about six months.

A natural injection I have used for knee pain is called orthovisc, it can also go under the name of monovisc and synvisc. Here is what the companies who make the product say about it ;

"Orthovisc is one of the hyaluronates used in viscosupplementation. Orthovisc is injected directly into the knee joint to restore the cushioning and lubricating properties of normal joint fluid."

"Synvisc-one replaces the worn out synovial fluid to relieve the pain and improve the knee joint’s ability to act as a natural shock absorber."

This treatment has been excellent for me and I receive an injection as needed which is usually every six to eight months. I have to be inactive for about forty eight hours afterward because it is a little stiff and needs to be iced. I would say it is one of the easiest treatments I have, that has the longest affect.

That's the bulk of the methods I have used for pain control, with the exception of the olive oil detoxes and blue green algae treatments and things like that which I have tried but feel that part of my life was a phase when I didn't realize the importance of dissertation while looking for help.

I know there are many other forms of treatment out there that others have found successful, other than the ones I have spoken about in my six sessions on pain control. If you're reading for the first time you can find the others here.

Controlling pain is complicated. Different types of pain, require different methods of treatment, and everybody is different. There's much to be learned by other people, especially people who have been dealing with chronic pain for a long time. There is also a lot of different treatments today. What I would ask is that you go into this with an open mind, but don't leave your common sense out of the equation.

Desperation can make us try many different things with a hope of finding a successful treatment or cure. Once again I caution you to use your own good judgment and trust your instincts; if you feel something is working for you, and you truly feel better, but if you know that it isn't working,you need to let that go. If you try treatments and they don't work for you, don't beat your self up about it chalk it up to experience.

Finally, if a treatment doesn't work, especially after a practitioner has promised you it would, please don't let it affect your attitude toward your condition. Just because someone can't help you with the method they have tried, doesn't mean you can't be helped. It is easy to let their failure to help create despair. Remember, not all treatments help all people, give things a chance but know when to walk away.
0 Comments

Day 21.  Pain, the invisible disability.

3/16/2015

0 Comments

 
I used to like shopping. I even liked grocery shopping. I always went on a Tuesday morning to get food for the week and then Friday morning early, to top up for the weekend. It was nice because the store was never very busy at those times and it wasn't too difficult to get a parking space. I would start with a list, coffee in hand and take my time.

That has changed a lot for me in the last year because my mobility has become so compromised. I need to park close if there are close parking places available. If not I use the dreaded handicapped parking with my parking pass. Here's where the negativity begins. I often get a look from some stranger who is deciding whether I am disabled enough to use that space. Once, just once I would like to say what is on my mind.

"Old man, you stand there and judge me yet I am half your age and my legs are in worse shape than yours. I have a spinal cord injury, a lung condition, and a knee that needs to be replaced. Just to name a few. And you stand there on your two good legs trying to make me feel worse about myself"!

Of course I don't say that. I smile and walk away and let him or her think whatever they want to. I can't deny it hurts and that’s the reason I don't often use it. So if you are shopping and see a younger person in a handicapped area please don't make assumptions. We may look good, but wait until we come out of the store and make it back to the car, that's a different story. Let the police look after those who offend this law.

That brings me to another point. It's the invisible illness curse. Many people live with a disability you can see. It is impossible to hide a wheel chair or canes etc. When you have an incomplete spinal injury there is no wheelchair, thankfully. Believe it or not that comes with its own set of problems. I cannot stand for any length of time or walk for very long stretches. I have to say that in every situation. It brings the conversation back to my disability when I would rather talk about anything else.

I'm not alone; there are others who have the same problem to deal with. Many who have MS, Fibromyalgia, cancer, etc. can look normally healthy on any given day. It doesn't mean that they don't need extra provisions made for them to be able to attend an event or get through the day.

My theory has always been to stay home if I don't have the energy to at least fix myself up a little. I often try harder if I feel bad the more dressed up and put together I am, probably means I'm in a lot of pain. Then somebody will inevitably say, "You look great". Don't get me wrong, I love to hear that, but as every chronic pain sufferer will tell you there's a "You look great!" and there's a "You look great".

We hear what your saying by the look on your face. We read your sincerity and appreciate it, but we can also read the look that says, you're not sick, in pain, or suffering in any way. Now to some that may sound a little crazy, but to those who have experienced this you know exactly what I mean.

The bottom line is there are people who love and support you and there are people who question whether you really are struggling. If you haven't experienced chronic pain, it is difficult to imagine getting up and dressed and out to an event, if you are having pain. The person judging you may have only experienced pain in an acute situation. When you have acute pain yes, you generally stay home and don't fix yourself up to go out. Chronic pain sufferers know if we have that attitude we won't go anywhere. If you can manage it at all, it is best to do what you can to get out in the world. We know that, they don't.

It is up to you to surround yourself with those who support you and do their best to not focus on the pain, but help you live the life you want to.

Don't let a stranger steal your joy, don't let the judgement of an acquaintance ruin your night.

0 Comments

Day 18. The joke is on him!

3/13/2015

2 Comments

 
Today is about doing my best. Barry has been encouraging me to go to Aqua Fit classes for a while now, and so has my doctor if the truth be known. I'm not totally against it, it is just that I have a number of legitimate excuses as to why not.

I guess the first is my deep seated memory of being in spinal rehab and spending hours in the pool as part of my rehabilitation. The second is that I don't really like getting wet, unless of course there is a sandy beach involved. The most compelling reason is, this winter it actually hit -40 Celsius here. Now seriously folks who would want to leave their cozy fireplace in the family room, in the dark of night, which arrives at 4.30pm and get into a pool. Not me!

Pain and lack of sleep are also not the best motivators so I have been dragging my heels.

On Saturday the clocks changed and it is almost 7.30pm before the sun sets. The temperatures are all above zero and the sun has been shining for days. So what was my most legitimate reason is gone.

I had been asking my Physio if I could try yoga again right up until about a month ago and at that time he said I was close but not ready. He doesn't have to tell me now, I can't even do most of my Physio stretches anymore. But I know for sure yoga is one of the things I'm looking forward to most when I can do it again. I asked about Aqua fit, I got a tentative okay, but don't overdo it.

I saw my doctor and asked about Aqua Fit, he laughed and told me to be careful but to give it a try. I had to laugh back because he said for safety sake to make sure Barry is with me!

We had our first session and I lasted twenty minutes of a 45 minute session, and I have to admit is was painful even though there was no impact. I spent another twenty minutes in the therapy pool and tried to keep moving slowly. The next day I was a little worse in the morning but absolutely no bad affects after that. Guess where Barry and I are headed again tonight?
2 Comments

Day 17. Link between emotions and pain.

3/12/2015

0 Comments

 
One of my readers pointed out that she doesn't have physical pain, but does have more than her share of emotional pain. From what I am learning though my own research and the Mindfulness course I am doing, there is a very strong link between both.

Those of us who feel more physical pain (in particular fibromyalgia patients) can usually track back to its onset, and see that we were dealing with a very difficult time emotionally. So what I want to say to those reading who live with chronic emotional turmoil, do your best to deal with it, or else you may be adding chronic physical pain to your emotional distress. In fact there are people in our chronic pain class that are there for emotional pain alone. Meditation does help both. In his book The End of Stress as We Know It, Dr. Bruce S. McEwen, states that prolonged or severe stress can actually weaken the immune system, strain your heart, damage memory cells in your brain, and deposit fat at your waist and buttocks which is a risk factor for heart disease and cancer. Stress also has been implicated in irritable bowel disease, aging, depression heart disease, rheumatoid arthritis, diabetes, just to name a few. So having stress as an inevitable part of your day is not to be taken lightly. You are setting yourself up to become sick.

The sun is shining and that helps with mood especially after the long winter we have had. Although I can't go for a walk, I think it is only a short time away till I can sit on the deck while writing and reading.

I have also recently learned that taking vitamin D can help with chronic pain. It appears as though this vitamin has many benefits. We all know how it affects mood and is said to help prevent cancer - and now pain relief. It is worth looking into. It is effective only when taken in large doses so you need to read the specifics around it before taking it. I have heard from a doctor not to take it if you have sarcoidosis or are prone to kidney stones. So unfortunately that leaves me out.

With spring around the corner I am finding myself feeling the hope of a good summer. I love to garden, fish and be out on the boat taking pictures. That's my goal moving forward, to think about what I want for the future and plan on it.
0 Comments

Day 16. Hospital Day. 

3/11/2015

0 Comments

 
Today started in an omg kind of way. I had an appointment at the hospital for physiotherapy one hour before I was scheduled to do a half shift of Pet therapy - at the same hospital.

Let me back up a bit. If you have been reading along, you know I have been having poor concentration because of lack of sleep. I would have never scheduled both on the same day, let alone within an hour of each other.

I haven't done a pet therapy shift in a couple of weeks and really wanted to get back to it, as I know I will be missing it so much after my surgery. The accommodation they made for me to be able to go was so kind. Someone set up for me, I didn't have to walk far, and Mary agreed to take half of the shift so it wasn't too long for me. I was all set. That is until I made the Physio appointment for right before. It didn't leave me enough time in between to go home and get the dog. With a clear head I would have spotted this problem and fix it while there was still time, but blinded by lack of sleep and pain, I now had a dilemma. Once again I am thankful for Jerri. Her young brain put it together for me. She would take me to Physio, bring the dog, and while I was at Physio she walked Whinnie and brought her back just in time for her pet therapy stint. It was fantastic shift that was very busy with a diverse group of doctors, nurses, patients and visitors. Whinnie and I loved being on duty again and it was honestly great to get out of the house and feel the sun shine on me.

I was able to do something I love because of the selfless acts of kindness from others. Thank you Mary for accommodating me and taking a half shift and thank you Jerri for driving me all over. Both of you make it look easy when I know it would have just been easier on everyone, if I had just stayed home. But because you did that for me I was able to be there today to allow many the comfort of Whinnie. Not to mention the sense of purpose and infusion of positivity it brings to my life.
0 Comments

Day 14. Being Thankful.

3/9/2015

0 Comments

 
Is there ever something that somebody does for you, that you don't even know how to thank them for? That happened in this house yesterday. Let me explain.

It's been months now since I was first diagnosed with spinal stenosis and I had surgery this past September. The pain is intermittent in my back, but more potently down my leg and into my foot. When it is active, that's the only way I can describe what happens; it is difficult and sometimes impossible to walk.

I have a lot of little jobs; therefore they have been piling up around the house for that day when the pain is not too bad. The trouble is, that day doesn't seem to be coming. One such job is my laundry room.

Sounds lame, I know. If you have seen my laundry you would understand. It is larger than most and has a smaller room/storage area off of it. It is downstairs, and most days the stairs are a challenge and some days they feel impossible. So we have developed a system. There's an area at the top of the stairs where I leave things for my family to bring down for me. In theory this works very well. When I go down my hands are then free and I have less chance of a fall. Under normal circumstances I go down into the laundry room and put all the various items where they belong. It wasn't the most organized place to start with so you can imagine the mess it was in.

Everyone has one of those rooms in their houses, or at least I think they do, where we hide the "stuff". Mine was the laundry room. Anything we couldn't find a home for got "temporarily" put there. It had gotten so out of hand, that even when I did feel okay, it was too much for me.

Yesterday Jerri and I tackled it! I lasted about an hour and at that point it looked like a bomb had gone off. I needed to lie down so I suggested we come back to it tomorrow. Off I went upstairs to retreat. Ice pack, heating pad and EMS later, I was feeling a little better. I ventured back downstairs and it was done!

It looks clean, fresh and inviting again. There's a large table in there, and there's nothing on it, can't remember the last time I saw the top of that table. Counters are clear and the cupboards are full. I wanted to cry with gratitude. What a gift.

It's hard enough to sort through your own mess, let alone someone else's. So today my beautiful daughter was of service, not just by being helpful, but by being truly there to serve. I had written about the difference in a previous post after reading this article. It really got me thinking about the difference. 

Part of giving is the willingness of the person to receive. I allowed that all to happen yesterday and received it with open arms. I think there is a lesson to be learned in everything. The old me would have had to been down there while it all happened. Giving up a little control was a huge gain for me.

So thank you Jerri for your selfless act of generosity. You showed your old Mom that it is okay to let go of some of that control once in a while, and allow others to do for you.
0 Comments
<<Previous
    Picture

    Maureen Clout

    I'm going in for a 4th neurosurgery; this time it's a repair to my lumbar fusion. Here, I will post my daily updates on dealing with diagnosis, surgery and recovery. Join me on my journey.

    About

    Archives

    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015

    Categories

    All
    Bad News
    Chronic Pain
    Crisis
    Daily Life
    Depression
    Doctors Appointments
    Family
    Fear
    Focus
    Friends
    Frustration
    Goals
    Help
    Insomnia
    Laugh
    Learning
    Leg Pain
    Meditation
    Memory
    Mindfulness
    Nap
    Neurosurgery
    Pain
    Pain Management
    Planning
    Preparing For Surgery
    Rehabilitation
    Risk
    Serenity
    Service
    Sleep
    Stress
    Strong
    Support
    Surgeon Appointments
    Surgery
    Toronto Western Hospital
    Travel
    Waiting

    RSS Feed

Powered by Create your own unique website with customizable templates.