Pain Fog: Living in spite of Chronic Pain
  • Home
  • About
  • Blog
  • Resources
    • Body Scan
    • Trial and Error
    • Relationships
    • Parenting in Pain
    • Mental Health
    • What the Doctors Don't Tell You
    • Travel
  • Contact

Day 60. The Pain Score. 

4/22/2015

0 Comments

 
Today I'm going to rant a little bit. Every single time I go to see a doctor concerning my spine I am given a three-page questionnaire to fill in. I sit there and stew over it. It has all kinds of questions about the pain. What type of pain do you have? How long does it usually last?... and so on. I answer those first because it is black and white. It is an easy answer for me. I can clearly describe the two types of pain I have. The nerve pain is searing, burning, electric and I might want to add horrifying. The back pain is different almost ever time I have it, I guess it just depends on what's going on inside. It is stabbing, throbbing, aching etc. So why do I dislike the forms so much?

I have had two neurosurgeries. I know what pain can feel like. So when they ask me to score my pain I'm inclined to score it on the lower end. It doesn't fit well with everyone else does. How do I know that? My first clue was watching others and seeing them all circle the ten. How I really knew I was different was that my doctors told me so. My perception of the pain I feel is different.

They have done a study on this very factor with disabled people, and their perception of what they can do greatly affects what they do. Two people with the same physiological impairment can live totally differently depending on how they perceive their disability. This perception can also change over time, as you learn to live with and navigate through the pain.

There is also a section there on self worth. In fact it is the biggest part of the question package. How do I feel about my self worth? Of course there's been a change in what I can do, but I'm still the same person. There are days when depression and discouragement seep in and I feel a little more trouble than I'm worth, but I get over it. I know when I read those forms - I feel indignant. I feel like they’ve got it wrong, I'm still worth something. It fires me up inside and I want to be the best I can be under my own circumstances. I cannot and will not pity myself and put that down in writing on some form at the doctor's office.

It doesn't mean I don't feel pain the same way any people do, but I also know how much worse it can get. I feel like some of those people filling out those forms just don't know how bad it can get. I don't know about them but I'm not tempting fate. I'm also about to enter the arena of the most pain I have ever felt by having another neurosurgery. I'm counting on all of you to remind me how much better it can be because it does work both ways. That goes for the depressive side of things as well, since surgery knocks the socks off anyone and you need to be gently reminded that it will get better - but getting through it is a struggle.

Perhaps one of the reasons for the forms is to set the fire in those of us who like a challenge, we read them and are then inspired to do better.
0 Comments



Leave a Reply.

    Picture

    Maureen Clout

    I'm going in for a 4th neurosurgery; this time it's a repair to my lumbar fusion. Here, I will post my daily updates on dealing with diagnosis, surgery and recovery. Join me on my journey.

    About

    Archives

    April 2017
    March 2017
    February 2017
    January 2017
    December 2016
    September 2016
    August 2016
    July 2016
    June 2016
    May 2016
    April 2016
    March 2016
    February 2016
    January 2016
    December 2015
    November 2015
    October 2015
    September 2015
    August 2015
    July 2015
    June 2015
    May 2015
    April 2015
    March 2015
    February 2015

    Categories

    All
    Bad News
    Chronic Pain
    Crisis
    Daily Life
    Depression
    Doctors Appointments
    Family
    Fear
    Focus
    Friends
    Frustration
    Goals
    Help
    Insomnia
    Laugh
    Learning
    Leg Pain
    Meditation
    Memory
    Mindfulness
    Nap
    Neurosurgery
    Pain
    Pain Management
    Planning
    Preparing For Surgery
    Rehabilitation
    Risk
    Serenity
    Service
    Sleep
    Stress
    Strong
    Support
    Surgeon Appointments
    Surgery
    Toronto Western Hospital
    Travel
    Waiting

    RSS Feed

Powered by Create your own unique website with customizable templates.